How do you have to prepare for treatment knowing there are limited protocols in place?

pain managementPatient Experience and TrustCommunication BarrierspaindiscomfortfrustrationEDSinfectioncatheter removalcathetergeneral practice

How do you have to prepare for treatment knowing there are limited protocols in place?

This is Robert and here he discusses his method of preparing for surgery and treatments that he has to undergo.

Comments

More from this author:

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

Ehlers Danlos Syndrome and the gap in protocols for people undergoing treatment.

This is Robert and here he discusses the gap in resources when it comes to protocols for people with Ehlers Danlos Syndrome and how that can impact individuals.

Alternative medicine.

This is Robert and here he discusses his experiences with alternative medicine and how it has impacted his symptoms.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

Ehlers Danlos Syndrome and the importance of educating family and friends.

This is Robert and here he discusses how education, awareness and empathy are important in gaining support for people with Ehlers Danlos Syndrome.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

How Ehlers Danlos Syndrome can impact the ability to perform activities.

This is Robert and here he discusses the impact Ehlers Danlos Syndrome has had on him with his related injuries and his ability to participate in activities that he enjoys.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

Are there things that you avoid doing with Ehlers Danlos Syndrome?

This is Robert and here he discusses the things he has learnt to avoid doing because of pain and fatigue associated with Ehlers Danlos Syndrome.

Feed Communities Create