Alternative medicine.

This playlist compiles videos from Robert who has been diagnosed with Ehlers Danlos Syndrome. The themes address his symptoms, complications experienced from medical treatments, support networks, difficulties, alternative therapies that work and aspirations for the future. He is a delightfully cheerful and humorous character and his experiences are valuable in offering insight into lived experiences within the community. Please watch these videos and react with the respect they deserve.

This is Robert and here he discusses his method of preparing for surgery and treatments that he has to undergo.

This is Robert and here he discusses the information variation from professionals who have limited to no experience with Ehlers Danlos Syndrome.

This is Robert and here he discusses his experience with diagnostics and wanting to know the type of EDS he has.

This is Robert and here he discusses his experience with delayed treatment and how that has impacted his life now.

This is Robert and here he discusses the variety of complications that can impact the body. He addresses an important aspect of understanding and awareness within the health care system that is missing for people with Ehlers Danlos Syndrome.