Holistic and Alternative PracticesPatient-Centric CareKnowledge and AdaptationPain Management Techniqueshernialymphomamultiple sclerosispainbone settingpsychic operationdiscsspinestomach

Alternative medicine.

This is Robert and here he discusses his experiences with alternative medicine and how it has impacted his symptoms.

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Robert Shillinglaw

Personal experiences with Ehlers Danlos Syndrome.

This playlist compiles videos from Robert who has been diagnosed with Ehlers Danlos Syndrome. The themes address his symptoms, complications experienced from medical treatments, support networks, difficulties, alternative therapies that work and aspirations for the future. He is a delightfully cheerful and humorous character and his experiences are valuable in offering insight into lived experiences within the community. Please watch these videos and react with the respect they deserve.

Robert Shillinglaw

Are there things that you avoid doing with Ehlers Danlos Syndrome?

This is Robert and here he discusses the things he has learnt to avoid doing because of pain and fatigue associated with Ehlers Danlos Syndrome.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

Genetics testing for children who have a parent with Ehlers Danlos Syndrome.

This is Robert and here he discusses his concerns around passing Ehlers Danlos Syndrome to his children and the pathway he was offered to diagnose them.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

What part of the diagnostic process could benefit from change?

This is Robert and here he discusses his experience with diagnostics and wanting to know the type of EDS he has.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

Ehlers Danlos Syndrome and the importance of educating family and friends.

This is Robert and here he discusses how education, awareness and empathy are important in gaining support for people with Ehlers Danlos Syndrome.

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