Advice given from professional without knowledge about EDS.

This playlist compiles videos from Robert who has been diagnosed with Ehlers Danlos Syndrome. The themes address his symptoms, complications experienced from medical treatments, support networks, difficulties, alternative therapies that work and aspirations for the future. He is a delightfully cheerful and humorous character and his experiences are valuable in offering insight into lived experiences within the community. Please watch these videos and react with the respect they deserve.

This is Robert and here he discusses the gap in resources when it comes to protocols for people with Ehlers Danlos Syndrome and how that can impact individuals.

This is Robert and here he discusses the variety of complications that can impact the body. He addresses an important aspect of understanding and awareness within the health care system that is missing for people with Ehlers Danlos Syndrome.

This is Robert and here he discusses his method of preparing for surgery and treatments that he has to undergo.

This is Robert and here he discusses his concerns around passing Ehlers Danlos Syndrome to his children and the pathway he was offered to diagnose them.

This is Robert and here he discusses the impact Ehlers Danlos Syndrome has had on him with his related injuries and his ability to participate in activities that he enjoys.