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Advice given from professional without knowledge about EDS.
Physiotherapy TechniquesPatient EngagementWellness Strategiesstressphysiotherapymuscles

Advice given from professional without knowledge about EDS.

This is Robert and here he discusses the information variation from professionals who have limited to no experience with Ehlers Danlos Syndrome.

Transcript (auto-generated)

This transcript was generated automatically and may contain errors.

This consultant at Royal National Orthopaedic Hospital about, I think I saw seven years ago, when she was saying what activities do you do and I was telling her and when I said I did weight training but I did it on a small scale only just to tone my muscles up because I would rip the muscles if you do heavyweights, you can't do that. I said, well, I'm only doing very, very lightweights just to keep the muscles working. No, you can't do that. Stopped, stopped it completely. So now the physiotherapist that I'm under, he's made me for Ellis Danmore's patients. That's all he deals with. And when I told him, he said, oh, Robbie, they're talking rubbish. All you have to do, whatever weights or rubber bands, rubber bands are the best ones to do. Just instead of pulling straight out, pull them halfway out. When you start feeling the tension, stop and release. I'm doing curls, just doing them halfway, because I like doing exercise because it eases tension and we all get stressed out, don't we? very easily get stressed out, especially when you've got a nasty patient and start blaming the NHS and blaming the staff and they haven't got a clue have they?

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