Personal experiences with Ehlers Danlos Syndrome.

How do you have to prepare for treatment knowing there are limited protocols in place?

Robert Shillinglaw

Are there things that you avoid doing with Ehlers Danlos Syndrome?

Robert Shillinglaw

The support network outside of EDS community groups.

Robert Shillinglaw

Ehlers Danlos Syndrome and the importance of educating family and friends.

Robert Shillinglaw

How Ehlers Danlos Syndrome can impact life and the importance of goals.

Robert Shillinglaw

How Ehlers Danlos Syndrome can impact the ability to perform activities.

Robert Shillinglaw

How delayed treatment has impacted Robert.

Robert Shillinglaw

How were you diagnosed?

Robert Shillinglaw

Reasons why individuals may not tell family about Ehlers Danlos Syndrome.

Robert Shillinglaw

Ehlers Danlos Syndrome and the gap in protocols for people undergoing treatment.

Robert Shillinglaw

Complications associated with Ehlers Danlos Syndrome that can impact the body.

Robert Shillinglaw

Genetics testing for children who have a parent with Ehlers Danlos Syndrome.

Robert Shillinglaw

What part of the diagnostic process could benefit from change?

Robert Shillinglaw

Did you know of anyone else in the family who had Ehlers Danlos Syndrome?

Robert Shillinglaw

Advice given from professional without knowledge about EDS.

Robert Shillinglaw

Alternative medicine.

Robert Shillinglaw

Robert Shillinglaw

How do you have to prepare for treatment knowing there are limited protocols in place?

This is Robert and here he discusses his method of preparing for surgery and treatments that he has to undergo.