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Are there things that you avoid doing with Ehlers Danlos Syndrome?
Support and IndependenceChallenges and Experiencesasthmabronchitishernialymphedemadifficulty in breathingfatiguepainhiplegsspine
Robert Shillinglaw
Robert Shillinglaw

Are there things that you avoid doing with Ehlers Danlos Syndrome?

This is Robert and here he discusses the things he has learnt to avoid doing because of pain and fatigue associated with Ehlers Danlos Syndrome.

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Robert Shillinglaw
Robert Shillinglaw

Personal experiences with Ehlers Danlos Syndrome.

This playlist compiles videos from Robert who has been diagnosed with Ehlers Danlos Syndrome. The themes address his symptoms, complications experienced from medical treatments, support networks, difficulties, alternative therapies that work and aspirations for the future. He is a delightfully cheerful and humorous character and his experiences are valuable in offering insight into lived experiences within the community. Please watch these videos and react with the respect they deserve.

Personal experiences with Ehlers Danlos Syndrome.
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Robert Shillinglaw
Robert Shillinglaw
in Ehlers Danlos Syndrome (EDS) Community

Personal experiences with Ehlers Danlos Syndrome.

This playlist compiles videos from Robert who has been diagnosed with Ehlers Danlos Syndrome. The themes address his symptoms, complications experienced from medical treatments, support networks, difficulties, alternative therapies that work and aspirations for the future. He is a delightfully cheerful and humorous character and his experiences are valuable in offering insight into lived experiences within the community. Please watch these videos and react with the respect they deserve.

Personal experiences with Ehlers Danlos Syndrome.
16