Are there things that you avoid doing with Ehlers Danlos Syndrome?

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Are there things that you avoid doing with Ehlers Danlos Syndrome?

This is Robert and here he discusses the things he has learnt to avoid doing because of pain and fatigue associated with Ehlers Danlos Syndrome.

More from this author:

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

https://health-shared.com/stories/genetics-testing-for-children-who-have-a-parent-with-ehlers-0473

Genetics testing for children who have a parent with Ehlers Danlos Syndrome.

Robert Shillinglaw

This is Robert and here he discusses his concerns around passing Ehlers Danlos Syndrome to his children and the pathway he was offered to diagnose them.

Genetics testing for children who have a parent with Ehlers Danlos Syndrome.

Robert Shillinglaw

Are there things that you avoid doing with Ehlers Danlos Syndrome?

This is Robert and here he discusses the things he has learnt to avoid doing because of pain and fatigue associated with Ehlers Danlos Syndrome.

Robert Shillinglaw

Personal experiences with Ehlers Danlos Syndrome.

This playlist compiles videos from Robert who has been diagnosed with Ehlers Danlos Syndrome. The themes address his symptoms, complications experienced from medical treatments, support networks, difficulties, alternative therapies that work and aspirations for the future. He is a delightfully cheerful and humorous character and his experiences are valuable in offering insight into lived experiences within the community. Please watch these videos and react with the respect they deserve.