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The support network outside of EDS community groups.
Supportive ActionsPersonal Empowermentpainsuffering
Robert Shillinglaw
Robert Shillinglaw

The support network outside of EDS community groups.

This is Robert and here he discusses his determination to help others even when he does not ask himself.

Transcript (auto-generated)

This transcript was generated automatically and may contain errors.

Aside from your community group, do you have a good support network? It's limited, it's limited and I don't like asking for help there unless I need to. I like to try and do it myself but I'd do anything for other people because of the pain and suffering. I feel sorry for other people that are suffering so I try and do things for them.

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Robert Shillinglaw
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in Ehlers Danlos Syndrome (EDS) Community

Personal experiences with Ehlers Danlos Syndrome.

This playlist compiles videos from Robert who has been diagnosed with Ehlers Danlos Syndrome. The themes address his symptoms, complications experienced from medical treatments, support networks, difficulties, alternative therapies that work and aspirations for the future. He is a delightfully cheerful and humorous character and his experiences are valuable in offering insight into lived experiences within the community. Please watch these videos and react with the respect they deserve.

Personal experiences with Ehlers Danlos Syndrome.
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