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What were your symptoms with Ehlers-Danlos Syndrome (EDS)

This is Nicci, an active member of the Ehlers Danlos Syndrome Community and passionate orthotist. Here she discusses the symptoms she has encountered with EDS.

Nicci Rogers
Nicci Rogers
Health Management StrategiesPatient ExperienceEDSpainstomach issuesgastrointestinal organs
Transcript (auto-generated)

This transcript was generated automatically and may contain errors.

What were your symptoms with EDS? When my EDS, so I've always had issues as a child. So I always was double jointed. I always had different parts of my joints, the sublux and things like that. And I was always in pain. I was in absolute pain as a child. That was because of the doctors all the time. And I had a lot of stomach issues. So it wasn't until my stomach issue progressed at the age of 21, where a lot of my gastrointestinal organs, some of them prolapse generally. So because of that, that's where that then led me to the diagnosis of EDS.

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Nicci Rogers
Nicci Rogers
in Ehlers Danlos Syndrome (EDS) Community

Ehlers-Danlos Syndrome (EDS)

This playlist compiles Nicci's lived experiences with Ehlers-Danlos Syndrome. She covers topics such as symptoms she has presented with, treatments that were available, how she was diagnosed, and types of support that were available. It is a valuable insight into a personal journey and must be respected for her courage in sharing. We hope it can shine some light and provide hope for those who have not been connected to this community.

Ehlers-Danlos Syndrome (EDS)
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