What was your journey from diagnosis through to management of Ehlers-Danlos Syndrome?

What was your journey from your diagnosis and now to your management of EDS? So it was a long journey, very stressful journey, lots of misdiagnosis and lots of lack of understanding. terms of my management now, so I'm under UCLH, I have the absolute amazing gastro consultant, really, really do, she's so understanding, I've been with her for the past 10 years, so she manages all of my stomach issues and things like that, and I have an amazing surgeon as well there that I'm under. In terms of everything else that's going on, a lot of it now is self-management, so things like lattes and swimming and stuff like that, but because of my job and because of changing my career to do what I do now, because I am within orthotics and because orthotics specializes within every single joint of your body, I know myself what sort of things I should be using. So because of that I can get better management because I know what I should or shouldn't be actually doing because it is my career. So for myself I find that my management is probably a lot better than other people with EDS management because unfortunately they are still doing that that circle and that's what I tend to find with a lot of my patients is they are still, although they've got the diagnosis, they do still feel that they're constantly going around in circles.