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What support have you found useful from family and friends?
Support SystemsAwareness and Experiencegenetic condition
Nicci Rogers
Nicci Rogers

What support have you found useful from family and friends?

This is Nicci, an active member of the Ehlers Danlos Syndrome (EDS) Community and passionate orthotist. Here she discusses how her family support network has helped throughout her journey with EDS.

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This transcript was generated automatically and may contain errors.

What sort of support have you found useful from your family and friends? My family are amazing, to be honest with you. I have a very, very supportive family. Since my diagnosis, I now have cousins that are diagnosed, so I was the first one diagnosed in my family. And because it's a genetic condition, we know that it's come from my mum's side of the family. So I have cousins on my mum's side of the family that have now been diagnosed. but my family are absolutely amazing, they're an absolutely great support network, they're really really good and particularly my mum, she fought for everything to get me diagnosed and to actually figure out what was going on when I was a child.

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Nicci Rogers
Nicci Rogers
in Ehlers Danlos Syndrome (EDS) Community

Ehlers-Danlos Syndrome (EDS)

This playlist compiles Nicci's lived experiences with Ehlers-Danlos Syndrome. She covers topics such as symptoms she has presented with, treatments that were available, how she was diagnosed, and types of support that were available. It is a valuable insight into a personal journey and must be respected for her courage in sharing. We hope it can shine some light and provide hope for those who have not been connected to this community.

Ehlers-Danlos Syndrome (EDS)
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