Robert Shillinglaw· September 21, 2021How were you diagnosed?This is Robert and here he discusses his experience with diagnosis of Ehlers Danlos Syndrome.
Robert Shillinglaw· September 21, 2021Genetics testing for children who have a parent with Ehlers Danlos Syndrome.This is Robert and here he discusses his concerns around passing Ehlers Danlos Syndrome to his children and the pathway he was offered to diagnose them.
Robert Shillinglaw· September 21, 2021Complications associated with Ehlers Danlos Syndrome that can impact the body.This is Robert and here he discusses the variety of complications that can impact the body. He addresses an important aspect of understanding and awareness within the health care system that is missing for people with Ehlers Danlos Syndrome.
Robert Shillinglaw· September 21, 2021Ehlers Danlos Syndrome and the gap in protocols for people undergoing treatment.This is Robert and here he discusses the gap in resources when it comes to protocols for people with Ehlers Danlos Syndrome and how that can impact individuals.
Robert Shillinglaw· September 21, 2021How delayed treatment has impacted Robert.This is Robert and here he discusses his experience with delayed treatment and how that has impacted his life now.
Robert Shillinglaw· September 21, 2021Reasons why individuals may not tell family about Ehlers Danlos Syndrome.This is Robert and here he discusses his reason for not telling his family about Ehlers Danlos Syndrome.
Robert Shillinglaw· September 21, 2021Are there things that you avoid doing with Ehlers Danlos Syndrome?This is Robert and here he discusses the things he has learnt to avoid doing because of pain and fatigue associated with Ehlers Danlos Syndrome.
Health Shared
