This is Andy, an early retired anaesthetic manager, who is discussing his personal encounter with Parkinson's disease.
Here he discusses a range of things to consider about the medication he takes for Parkinson's inclusive of accessibility, planning, and lifestyle changes.
Transcript (auto-generated)
This transcript was generated automatically and may contain errors.
but back to the medication. So medication and also getting medication is quite stressful because at the end of the day I literally can't function without it and so every day, evening when I was in England, towards the end of my tablets, when my tablets were running out I had to fulfil my prescription. It always stressed me out because at the end of the day, I had to rely on other people to make sure that I had medication, that I could get medication. So pharmacists, GPs, etc, etc. You know, and sometimes your prescription will be late because the GP was busy, forgot to sign it, etc, etc. And then also, you get to the pharmacist and they haven't got your tablet. They haven't got any stuff, so you have to wait a couple of days for them to get it back. Here, they've got a a restrained system here. So you go to GP and they give you six months of prescriptions and they date them. So here if you, like September's prescription I can fulfil, but only between something like the 16th of September to the end of September, so they date them. So they only become valid for about 10 days and if you miss that window you can't get your prescription. But also, you know, it's, you know, every time I go to the, every time I have to get, we've, every time I have to get a new prescription, I go to the pharmacist and I, I'm sort of, please, please, please have all the drugs. And he's not too bad here because he, he, he knows I come in every month, so he does stockpile them. But at the end, it's again, sometimes he can't get them. And so it's quite stressful knowing that you have to allow other people to make sure that, you know, I have to allow other people to make sure I can continue to function really. You can't function without them. A lot of them make you sick. A lot of Parkinson's people lose weight. I lost loads of weight. Not to be fronting, most of my time I can actually take it without a problem. But I did lose an awful lot of weight. Which of course I tell people, I exercised, ran loads, did loads of things, but I didn't. I sat my arse and my Parkinson's lost the weight for me. Not quite sure how it worked, but it did. But people generally lose loads of weight. a lot a lot because the tablets make them so sick and then there's a there's only a couple but one I think there's any I think def medron is the only one you can take the only antimissive you can take lots of things and interacts with Parkinson's I recently had the Kovid vaccination the second one two days ago in fact so I had to make sure before I had that that it didn't interfere with my Parkinson's medication. Some antibiotics interfere with it, and I'll make it, there's one, ampicillin makes your Parkinson's medication almost like double-strand, which is pretty bad. And a couple of tablets, Codigemol, can't say that because it makes my Parkinson's, it doesn't work at all. And also, talking about it doesn't work at all, lot of Parkinson's medication it's not guaranteed to work. Like I said my diet also one of the reasons I think I did lose weight being serious now was because you know before you know it's particularly when I came here I would have to you know we go for pizzas, they ate late, they ate late, they ate late here. So like going for pizzas and stuff right and there's a great pizza place on the corner, a fantastically special corner. And it's, um, I can't go late because if I eat before the medication, my night time medication, which helps me sleep, I can't sleep without it. And if I, if I eat at like nine o'clock at night and by 11 o'clock at night I'm going to take it, then it's not going to work. It'll get stuck in the food. So it's the chance working really slim so therefore that sort of cut that kind of thing out so you know when we're all coming off the pizza place because no one goes there till nine o'clock at night then um i can't go but if i go i sit there drinking water or a couple of beers and most of them we eat fantastic smelling pizza um it's a bit of a pain uh again lunch so breakfast I can't my my my tablet says my first tablet 8 o'clock 8 15 so no food provided no food before 8 15 um again like my second tablet is at 11 15 then my third's at 2 so again no real food until no lunch until after 2 and that gives me a clear until 5 o'clock when I take the next one So, and even after all of that, I'm still not guaranteed that my tablets will work. So, you know, I can take them on sometimes. It's like they've gone on holiday. No, I'm on holiday, but I'm not working. So, it's difficult, the medication. medication and it's it's difficult because it's it challenges a it's good it turns my life around I have to I said mom I said me working that's what I'm gonna do I have to work around when my meds are working so if I want to go to the shops say the store Maria's store down the end of the street I can I can I I can only do it after my morning medication or after my afternoon medication or my 11.15 medication or after my five o'clock medication so I can't you know I can't just willy-nilly sort of wantonly think oh I'm running the shops now no no no no no no they have tablets
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