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Is our understanding of long Covid getting better?
Patient Experience and AwarenessCultural and Social Factors in HealthcareHealth Complications and Recognitionlong COVIDmeningoencephalopathyperipheral neuropathydeliriumdizzinessfoghallucinationleft leg weaknessloss of visionphotophobianeurology

Is our understanding of long Covid getting better?

Consultant Physician Dr Ali Sheikh explains that our intial focus was mainly on the respiratory symptoms of Covid, but other symptoms (especially neurological symptoms) were less appreciated especially in her personal experience. But our understanding is getting better as we learn more about the virus.

Transcript (auto-generated)

This transcript was generated automatically and may contain errors.

Dr. Shaikh, I mean, you've told us both, you know, on camera and off camera about some of the experiences you've had with long COVID and how it's affected you. Do you think healthcare workers and wider society, in fact, have any appreciation of what you've been through with long COVID? I think so. Because nobody's aware of the complications of COVID, even at the start, the focus was on the respiratory symptoms. So supposedly I was getting hallucination and delirium which wasn't I was I am as a doctor even couldn't find out because I keep saying I have a fog around me or I had a photophobia but I couldn't pinpoint that it may be meningoencephalopathy and my colleagues even didn't appreciate it so for them it was like a maybe due to high temperature I had these symptoms. I think in the second wave if people report these things properly at least they can consider in the differential that it can affect the brain in a very different way like some of my colleagues mentioned that do I suffer from depression is that all your psych issues and practically it wasn't any psych issues there was no anxiety I'm pretty sure it was very I was hallucinating I was seeing things and I had loss of vision or I had the left leg weakness which I've kept falling to the left I think they just need more awareness and probably by the end of the second wave people will be more empathetic. Do you think people now have a better understanding or do you think it's still very very... No I think it's getting better because neurologists and we in our even in Chi A clinic are seeing more and more of these patients particularly this peripheral neuropathy or dizziness particularly because you can't see dizziness you know it's a very subjective sensation so it's quite difficult to tell them. amazingly one of the doctors in BMJ wrote and say i always felt that i'm falling backwards and exactly that i was feeling so i i can't even go to washroom you know i couldn't walk even to the toilet myself i have to hold on bars for for seven ten days and amazing it was a month of ramadan so i have to wake up to prepare suhoor for my son you know when i was always holding on to this is It was just amazing. It was a very difficult experience.

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