This is Andy, an early retired anaesthetic manager, who is discussing his personal encounter with Parkinson's disease.
Here he discusses the way it feels when the tablets work for him in combination with the positive lifestyle changes he now associates with having Parkinson's.
Transcript (auto-generated)
This transcript was generated automatically and may contain errors.
my muscles, things like how I know my tablets are working when they're starting to work is they're normally with my legs first and what I find quite interesting is my toes straighten out, they're like curled up almost as if I'm hanging onto a tree like a bird hanging onto a tree and then when my when when they were when my toes are working I look at my toes and they're straight and it's um that's quite bizarre it's quite bizarre and that's quite bizarre when your toes are so curled up that's actually painful and then all of a sudden they unravel themselves on their know that's quite that's quite a bizarre thing actually but funny at the same time and muscle cramps and stuff that's that's that's quite bad that they're quite painful and it's actually also what they don't tell you they don't tell you it's a painful disease not once I told it's gonna be painful it is it's very painful stomach muscles tightening up like a Stomach cramp, leg cramp is difficult. You wake up in the middle of the night and you've only just gone to sleep. That's very painful, it's quite bad. But stretching, when you have this work and you stretch, my God, you think you're in heaven. You can actually open your muscles up. It's fantastic. and it's like it's it's it's I know there aren't there aren't many pleasures with Parkinson's it's not it's it's you know it wouldn't be something I'd give to someone as a birthday present it's so much fun but there is but he's put me Parkinson's fantastic this is what I wanted and so when you you tell me you tell me so it's like a I'm having explained it if you have when I had my um so I had a surgery when I was but um Mike's name um did surgery and um he did a spinal because I'd broken my ribs at some point and yeah I broke my ribs I broke my ribs at Disneyland and so when I fell over a barrier that was there to stop people falling over so anyway it was about three or four weeks before surgery he gave me a spinal And when the spinal goes off, you get kind of this warm, gushy, wonderful feeling in your legs. It goes right the way up to your back. And it's a very similar feeling with Parkinson's, which happens all the time. It's like a warm rush in your legs. And before you know it, you're stretching. Oh my God, it's fantastic. It's pure pleasure. Honestly, it's amazing. And then, so, you have to pick the good bits, you know, if I had no Parkinson's, I wouldn't be living in Crete. I'd be stuck back in the office or doing something else. So, day in, day out, I'd be either managing the department or working in whatever was ordained. If I'd stayed, if I'd stayed, and he had given me the job full-time because I hadn't got Parkinson's, I wouldn't be here, and I love living here. I wake up in the morning and I look out my kitchen window and I see the mountains and the big blue sky. But other than that, it is a pretty stunning place to live. And I'd never have a house this size in London. I don't know if I'd be able to afford it. It's not massive, but it's big. I've never had a den. It's a bit that way. Even though I don't even know what a den is, the kids call it a den. I'm not quite sure what den means, but the kids call it den. And I have blinds in the window, I can pull blinds down. So I have to consider myself quite fortunate in that way, in that respect. And the kids can do what they want. In London, the kids, I'd never let the kids at the house on their own, not a seven or 10 year old. But here they roam around the village, the villages, everyone knows where, everyone knows everyone in the village, they play with these kids. Sometimes the kids will come back here with them, And so, you know, it's a million times better for the kids. I wouldn't, I don't want to sort of say there are Parkinson's, you know, advantages, because it's not really, you know, I wouldn't wish it on anyone, my worst enemy. But there are positives, you know, if you look for them, there are positives. And that's very much the way I have to be, Because if you start thinking about what's to come, or what might come, or how your life's gonna end up, then you would get pretty depressed.
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