How Ehlers Danlos Syndrome can impact the ability to perform activities.

This is Robert and here he discusses the variety of complications that can impact the body. He addresses an important aspect of understanding and awareness within the health care system that is missing for people with Ehlers Danlos Syndrome.

This is Robert and here he discusses the gap in resources when it comes to protocols for people with Ehlers Danlos Syndrome and how that can impact individuals.

This is Robert and here he discusses how education, awareness and empathy are important in gaining support for people with Ehlers Danlos Syndrome.

This is Robert and here he discusses his reason for not telling his family about Ehlers Danlos Syndrome.

This is Robert and here he discusses his concerns around passing Ehlers Danlos Syndrome to his children and the pathway he was offered to diagnose them.

This is Robert and here he discusses the information variation from professionals who have limited to no experience with Ehlers Danlos Syndrome.