How Ehlers Danlos Syndrome can impact the ability to perform activities.

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How Ehlers Danlos Syndrome can impact the ability to perform activities.

This is Robert and here he discusses the impact Ehlers Danlos Syndrome has had on him with his related injuries and his ability to participate in activities that he enjoys.

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Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

How Ehlers Danlos Syndrome can impact the ability to perform activities.

This is Robert and here he discusses the impact Ehlers Danlos Syndrome has had on him with his related injuries and his ability to participate in activities that he enjoys.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

Complications associated with Ehlers Danlos Syndrome that can impact the body.

This is Robert and here he discusses the variety of complications that can impact the body. He addresses an important aspect of understanding and awareness within the health care system that is missing for people with Ehlers Danlos Syndrome.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

Genetics testing for children who have a parent with Ehlers Danlos Syndrome.

This is Robert and here he discusses his concerns around passing Ehlers Danlos Syndrome to his children and the pathway he was offered to diagnose them.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

The support network outside of EDS community groups.

This is Robert and here he discusses his determination to help others even when he does not ask himself.

Personal experiences with Ehlers Danlos Syndrome.

This playlist compiles videos from Robert who has been diagnosed with Ehlers Danlos Syndrome. The themes address his symptoms, complications experienced from medical treatments, support networks, difficulties, alternative therapies that work and aspirations for the future. He is a delightfully cheerful and humorous character and his experiences are valuable in offering insight into lived experiences within the community. Please watch these videos and react with the respect they deserve.

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