Hounslow Disabilities Montage

I was diagnosed with glaucoma in 2006 and since then my sight just gradually gets worse. Well I've been into Moorfields and I've been into Charing Cross and both experiences were good. Well my patient experience is that, as I've said, I've been to the hospital quite a lot of times. The experience I've had is at night time when you're admitted in the hospital And that's the worst experience I've had, is that you're lying in your bed and there's no, well there's a buzzer there, but there's no, somehow some nurses, I'm sorry to say this, but some nurses put their buzzers away somewhere else, above you so you can't reach it. My only downside was, obviously as you've been in A&E for nearly six to seven hours, we generally need to go for the toilet. I had to shout out at least four or five times. I found the experience in hospital quite interesting and staff were quite good at explaining when I asked them if they would explain who they were because I can't read name tags and they explained all the procedures that they were doing. Some unexpected issues are just some of the responses from the NHS and local managers about his care. When he went to the epilepsy school, his residential morning to Friday, we thought his local GP would continue to be his local GP until we had a letter in the post saying that he does no longer have a GP in the local area. We would have to register in every week as a temporary patient. Anywhere you go, I think you should make everybody aware of your eyesight so they're more helpful. And if anybody says to you, oh, it's over there, say instantly, where is over there? Because they walk away and think that over there is sufficient for you. So please say to anybody, please show me where it is. Don't accept over there. In my role as a scrutiny member, we've made a great deal of play of how to treat patients in a hospital setting. One of the amazing things that I found, that except for the tablets, my lunches, my breakfast and my evening meal were put on a tray miles away from me and and I had to wait until somebody could could come and move the tray so that I could enjoy it or otherwise the meal that was in front of me. The other irksome thing was you were not allowed to vary the diet so the problem I had was as I'm allergic to things like mayonnaise and I have a distinct dislike to spicy foods that often I had to have a boring old jacket potato with grated cheese because they would not either get a dietitian to help me or listen to any variations on the diet. The information you've seen so far has been about people who are visually impaired specifically and disabled people who have been treated a certain way by medical practitioners, by the NHS or by doctors and nurses. We want to know what experience you've had in this industry and sector and make sure that you guys share the information with us.