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Genetics testing for children who have a parent with Ehlers Danlos Syndrome.
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Robert Shillinglaw
Robert Shillinglaw

Genetics testing for children who have a parent with Ehlers Danlos Syndrome.

This is Robert and here he discusses his concerns around passing Ehlers Danlos Syndrome to his children and the pathway he was offered to diagnose them.

More from this author:

Robert Shillinglaw
Robert Shillinglaw
in Ehlers Danlos Syndrome (EDS) Community

Personal experiences with Ehlers Danlos Syndrome.

This playlist compiles videos from Robert who has been diagnosed with Ehlers Danlos Syndrome. The themes address his symptoms, complications experienced from medical treatments, support networks, difficulties, alternative therapies that work and aspirations for the future. He is a delightfully cheerful and humorous character and his experiences are valuable in offering insight into lived experiences within the community. Please watch these videos and react with the respect they deserve.

Personal experiences with Ehlers Danlos Syndrome.
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