Ehlers Danlos Syndrome and the importance of educating family and friends.

You may think I'm hard there, but when I see ADS sufferers online, and they talk about their problems, I know a lot of it can't be helped, and it's like, my son suffers from anxiety. I didn't know what anxiety was all about until I went to the meeting and then we've got this chat room as well and you see them all chatting about their problems. Anxiety is terrible and now I can understand my son's point of view, what he goes through. So I'm more sensitive and sympathetic towards him, you know. But if only the sufferers educated their families and friends, then they would understand what they're going through and then they would be able to be sympathetic towards them and then that eased the pain a little bit, you know.