Ehlers Danlos Syndrome and the importance of educating family and friends.

anxietyfamily educationsympathyunderstandingpain reliefanxiety managementemotional supportcommunity support

Ehlers Danlos Syndrome and the importance of educating family and friends.

This is Robert and here he discusses how education, awareness and empathy are important in gaining support for people with Ehlers Danlos Syndrome.

More from this author:

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

https://health-shared.com/stories/genetics-testing-for-children-who-have-a-parent-with-ehlers-0473

Genetics testing for children who have a parent with Ehlers Danlos Syndrome.

Robert Shillinglaw

This is Robert and here he discusses his concerns around passing Ehlers Danlos Syndrome to his children and the pathway he was offered to diagnose them.

Genetics testing for children who have a parent with Ehlers Danlos Syndrome.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

https://health-shared.com/stories/what-part-of-the-diagnostic-process-could-benefit-from-change-0469

What part of the diagnostic process could benefit from change?

Robert Shillinglaw

This is Robert and here he discusses his experience with diagnostics and wanting to know the type of EDS he has.

What part of the diagnostic process could benefit from change?

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

https://health-shared.com/stories/how-ehlers-danlos-syndrome-can-impact-the-ability-to-perform-0740

How Ehlers Danlos Syndrome can impact the ability to perform activities.

Robert Shillinglaw

This is Robert and here he discusses the impact Ehlers Danlos Syndrome has had on him with his related injuries and his ability to participate in activities that he enjoys.

How Ehlers Danlos Syndrome can impact the ability to perform activities.

Robert Shillinglaw

Personal experiences with Ehlers Danlos Syndrome.

This playlist compiles videos from Robert who has been diagnosed with Ehlers Danlos Syndrome. The themes address his symptoms, complications experienced from medical treatments, support networks, difficulties, alternative therapies that work and aspirations for the future. He is a delightfully cheerful and humorous character and his experiences are valuable in offering insight into lived experiences within the community. Please watch these videos and react with the respect they deserve.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

https://health-shared.com/stories/complications-associated-with-ehlers-danlos-syndrome-that-can-0583

Complications associated with Ehlers Danlos Syndrome that can impact the body.

Robert Shillinglaw

This is Robert and here he discusses the variety of complications that can impact the body. He addresses an important aspect of understanding and awareness within the health care system that is missing for people with Ehlers Danlos Syndrome.

Complications associated with Ehlers Danlos Syndrome that can impact the body.