How Ehlers Danlos Syndrome can impact life and the importance of goals.

mobilitypersonal goalsfamilymotivationachievementPersonal DevelopmentDriving SkillsSupport Systemspain managementadaptation to disabilityindependenceself-improvementpain

How Ehlers Danlos Syndrome can impact life and the importance of goals.

This is Robert and here he discusses his aspirations despite his difficulties from post operative complications.

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Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

Ehlers Danlos Syndrome and the importance of educating family and friends.

This is Robert and here he discusses how education, awareness and empathy are important in gaining support for people with Ehlers Danlos Syndrome.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

Personal experiences with Ehlers Danlos Syndrome.

This playlist compiles videos from Robert who has been diagnosed with Ehlers Danlos Syndrome. The themes address his symptoms, complications experienced from medical treatments, support networks, difficulties, alternative therapies that work and aspirations for the future. He is a delightfully cheerful and humorous character and his experiences are valuable in offering insight into lived experiences within the community. Please watch these videos and react with the respect they deserve.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

The support network outside of EDS community groups.

This is Robert and here he discusses his determination to help others even when he does not ask himself.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

Ehlers Danlos Syndrome and the gap in protocols for people undergoing treatment.

This is Robert and here he discusses the gap in resources when it comes to protocols for people with Ehlers Danlos Syndrome and how that can impact individuals.

Robert Shillinglaw

in Ehlers Danlos Syndrome (EDS) Community

Complications associated with Ehlers Danlos Syndrome that can impact the body.

This is Robert and here he discusses the variety of complications that can impact the body. He addresses an important aspect of understanding and awareness within the health care system that is missing for people with Ehlers Danlos Syndrome.

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