How Ehlers Danlos Syndrome can impact life and the importance of goals.

I've suffered with it all my life. There's times when I haven't been able to go to work because I've had to lie in bed for three, four weeks at a time when the pain's too much and I can only do so much now. I'm inhibited in the wheelchair. I'll tell you what, my cousin was selling his car, the BMW 3 Series 2008, and it's only done 56,000 miles and it's automatic and I've got a Volvo, so I thought right I'm going to buy that BMW of them and everybody's saying to me why you can't walk, I said yes but that's my little goal, I want to be able to get in that car and drive it and they all laughed at me. And you know what I can do now Leah? I can get in the car, it was hard to get in at the beginning, but I can get in the car, I go back backwards and turn around and I can drive the car about five metres forward and five metres back. Right, now my goal is to be able to drive that car down to my daughter's house which is about six miles away from me and then drive back again I know that's that that that would be a miracle to me if I can do that I'll be happy and that's why I bought this car because that's my goal in life.