This is Andy, an early retired anaesthetic manager, who is discussing his personal encounter with Parkinson's disease.
Here he discusses the role pain plays with contractures and what he has found that does not work for him.
Transcript (auto-generated)
This transcript was generated automatically and may contain errors.
there are so many aspects of the disease. And, you know, some people get some good things, some people don't get anything. Some people, you know, some people are genuinely, you know, they're just stuck in chairs, can't get out. It's also quite painful. It's a painful disease. Pain isn't one of the things you associate with it, but it's very painful. It's like stomach cramps. When the medication wears off, all your muscles tighten up. So your stomach particularly is painful, or you said your stomach your abdomen rather than your stomach um it tightens up um cramp your toes curl up and that is incredibly painful um so you know it's it's it's a lot it's a lot more painful than people think it is it's not it's not one there's it's not one it's not it's not any illness that is associated with pain but it is painful do you have stuff to help with the contraction? Yeah, the tablets help. Painkillers don't really work because by the time painkillers are working, generally medication's kicked in. Because these things happen when your medication wears out, wears off. And so it's not, taking painkillers doesn't really work. By the time they're working, your tablets are working. So you just kind of grin and bear it. sort of the toe thing is it the kids out of bend my toes like I stand up and sort of you know bend them back naturally um but it's on the whole it's it's painful I have to say
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